Parents Blog

Posts Tagged ‘bipolar’

“Unlike Santa, ‘Recovery’ is Real”

Friday, November 19th, 2010

Em and I spoke at our local NAMI Affiliate’s “Family to Family” class the other evening, and were blessed by each of the participants in so many ways.

For example, there was a physician in attendance as a student who, towards the end of the session, shared with all what only a few seem to know. He reminded us that a mental illness is just that, an illness. It is biological in nature, therefore, like other illnesses, it responds to appropriate treatment. The challenge we face is helping those who suffer to realize that they suffer from an illness and that they should seek treatment.

There is that “Should” word. A professional peer of mine long, long ago was fond of saying, “Thou shall not ‘should’ on others”. Unless someone is asking for your opinion and they trust you, the word “should” usually results in either a defensive reaction or “shutting down”.

I love the book, “I’m not sick, I don’t need help”, by Xavier Amador. The title alone defines the problem that those of us who love someone who suffers from a mental illness face in total frustration. How do you break through their defensive reaction, or total shut down?

When my daughter, Emily, had her first diagnoses, Bipolar Disorder Rapid Cycle, she was prescribed a number of different psychotropic meds. My reaction? Great! We know what the problem is and the pills will take care of the problem. It took me a year before I was willing to admit that my behavior, as her father, was keeping her from her path to recovery. My behavior more often than not, caused her to shut down. On occasion, she would rise in defiance. The net result was that I was blocking her road to recovery.

But that is another story. It was impossible for me to realize my behavior was having such a negative impact upon Em’s recovery because I didn’t understand the complexities of all that’s involved in someone’s recovery. NAMI’s Family to Family course was the course that opened my eyes.

I assume that if you are reading this, you most likely have a loved one who suffers from a mental illness. If you are a parent, like me, I encourage you to go to NAMI.org to learn more about “Family to Family”. You’ll never solve the problem until you understand the root cause. You’ll never understand the root cause unless you take that first step, seeking the help you need. Once you take that step and begin to understand, then, and only then will you be able to start your own journey on becoming the kind of father your child needs you to be.

Stop looking at the reality of your current family situation and begin to imagine what you want it to be. In my case, my vision was “living in an emotionally safe home to which my family could return at the end of each day in peace and joy.” NAMI’s Family to Family course helped me see the way that vision could become closer to reality.

What are you waiting for? www.nami.org/

“In the Blink of an Eye!”

Tuesday, June 22nd, 2010

For those who have wondered where I’ve been, I’ve been dealing with another “Blink of an Eye” event.

Life changes in a “Blink of an Eye!” My life changed forever as I listened to a voice mail on May 18, 2000. That was when and how I learned of my daughter ‘s, Emily’s, attempted suicide. That was the day that I entered into the world of mental illness, not as member of an extended family dealing with mental health issues, but as a father of a daughter who was ill. My life changed in the blink of an eye.

Everyone one of us has had a “blink of an eye” experience: Lost job, lost wealth, death of a loved one, abandonment, just to name a few.

My fiancée, Kathy, complained about numbness on her right side the morning of May 29th. Her speech, facial expressions, balance were all normal. “I must have slept the wrong way”, was her logical reasoning, and off to work she goes. Two hours later, I get a call from Kathy telling me that she still felt numb and thought she should go and “get checked out”! I immediately left to pick her up and take her to the Emergency Room. Within minutes we discover she had experienced a stroke or a TIA, A TIA is a transient ischemic attack, a “mini stroke” that occurs when a blood clot blocks an artery for a short time. Life changed for Kath and me in “the blink of an eye”.

She is much better today thanks to the prompt diagnosis and treatment she received in the next 24 hours. She had a CAT scan, MRI, and more. She was released from the hospital with a list of additional tests to undergo. She’s now on prescription drugs for blood pressure, cholesterol, and an aspirin once per day.

Kathy does have residual neurological symptoms, in that her right side becomes weak after our walks. She also noticed the same occurrence after serving coffee to several residents at her job; again, when driving in “beep and creep” traffic having to put her foot on the brake frequently.

We are making changes in our life style which include, but not limited to, portion control, decreased sodium intake, limiting alcohol intake, and daily long walks. I’m sure Physical Therapy will be prescribed too.

It is our faith in God that sustains us, especially in times of crisis. Kathy shares my love for “Duct Tape”, focused reflective prayer. “Duct Tape” is an integral part of Kath’s recovery. We spend time in the “Word” each day, seeking wisdom and understanding. We have open and honest dialog with one another in His Presence. We trust in His Word when He says, “Be anxious for nothing, but in everything, by prayer and petition, with thanksgiving, present your request to God; and the peace of God which transcends all understanding, will guard your hearts and minds in Christ Jesus.” (Phil. 4: 6-7) Duct Tape will keep us in alignment with our life style choices.

If you share our faith in Christ, you can help by adding us to your prayer list. Please pray for His help in keeping us on our new path to wellness. What we have is so precious; please pray that we will, indeed, grow old together.

A Proud Daddy

Thursday, October 22nd, 2009

Emily and I keynoted NAMI North Carolina’s Annual Conference last week. We have been doing these presentations since 2004. Every time we do, I never know what Emily will say. What I do know, I’m always pleasantly surprised, no matter what she says.

We had our preconference preparation meeting a few days before we left for Raleigh, NC. I gave Em a couple of ideas, not as her father, but as her public speaking coach. She took those ideas to heart and “hit the ball out of the park”.

She used stories to illustrate her points. She had two concise messages: one for parents, and one for her peers. The feedback from the audience was immediate and extremely positive.

Don’t take my word for it. Becky Faucette from NAMI NC just wrote to say about Emily, “I know you must be so proud of her. She was so well spoken and meaningful.”

If you want to know what she said that was so powerful, why not visit her blog and ask her.

All I have to say is that I’m one proud Daddy! Thanks, Em.

Duct Tape … a necessary tool for leadership

Thursday, October 8th, 2009

Someone once asked me to think of all the people you have worked for in life. I hate that phrase, “work for”. Those for whom I “worked for” were usually uninspiring and often boring. I worked hard at minimizing my need to be in contact with them. Tell me what you want done, then get out of my way while I do it. There was no passion, no excitement, no sense of doing something for the greater good. There simply was a job to do that didn’t seem connected to anything else.

More years ago then I care to remember, there was a very real leader in my life. This leader was not my boss. Matter of fact, this leader had nothing to do at all with the organization which employed me. This leader was the President of the Pennsylvania Jaycees. At the time, I was President of the Camp Hill Jaycees.

My interactions with this leader were few and far between. Whenever we did interact, he would speak about the future. He would paint a word picture describing what a successful chapter looks like. He helped us see how the three strategies of the US Jaycees, if used correctly, would produce great results. He inspired me to want to do great things.

Following his lead, our local chapter climbed out of the depths of the fear of losing our charter to being ranked among the top 25 chapters in the state. There was no monetary award attached to this accomplish. There was simply a compelling vision to guide us, a series of proven strategies to follow, and a never ending passion to see it through.

It was only two years later that I began my first business. My vision, my passion, helped me overcome so many obstacles in so many ways. It was this vision, and this passion that allowed me to build a business which met many goals.

But in the year 2000, my vision and passion gave way to a greater concern, that of the survival of my daughter. An attempted suicide of a teenage child will definitely blind side you, and knock you off game.

As time went on, I eventually got back on track. However, there was a new track beginning to develop. I’m still passionate about my business. But my passion for a new vision continues to grow stronger and stronger every day.

What is this new vision? More than anything, I want to work with people who are faced with the unpredictable and often frustrating behaviors of a loved one who suffers from a mental illness. I want to help them to:

• Accept that their loved one suffers from a mental illness.

• Understand that a mental illness, like other illnesses, is treatable.

• Believe that there is hope for recovery.

• Realize that they can make a difference in that recovery.

• Want to learn what it is they can do to help.

What does Duct Tape have to do with this? What does Duct Tape have to do with leadership?

I use duct tape every day. Every day, I read my vision statement. Every day, I focus! Every day, I reflect. What am I doing that is working, for those are the things I want to be sure to continue. What am I doing that is not working? These are the things I need to stop doing. What is something new, something that I haven’t tried before but might work?

If I ever expect others to follow me, I better have a pretty clear vision of where I’m headed. A daily dose of Duct Tape guarantees just that.

If it Doesn’t Move and it Should …

Wednesday, September 16th, 2009

…Use WD-40! The following is an excerpt from “Duct Tape and WD-40 … a parent’s guide to the mysteries of a bipolar child”

“Let’s focus on “WD-40”: Listen; Learn; Help; Lead. No matter the cause when you “listen to learn”, you will find that people open up, sharing things with you. Listening is the most effective tool you can use to enhance all your personal relationships.

“To get started identify the primary individuals with whom you need to reconnect? Identify the opportunities for that day when you might be able to listen to learn and understand the needs of those individuals. How about your family? What is it that you feel is important to them? Now move to thoughts of extended family, friends, and others. Are there those who are experiencing some form of hardship? You will always come in contact with people who are in great pain.

“Write down any thoughts that come to mind. Make a list of things you could do to show your love.

“What might those things be? (Feel free to write in the book.)

“First Rule of WD-40: to keep from damaging a relationship or could damage further by being angry, take a hike. That’s right, just get away and let the simmer cool down. This will give you time to reflect on how to respond and it will also provide some time and space from the behavior that caused your problem.

“Second Rule of WD-40: When you’ve calmed down, try listening. Ask an open-ended question. Then shut up and listen. “I don’t understand. Can you help me to understand?”

And from the forward by Newt Gingrich, “The power of David’s book for any other family faced with these challenges is its very honesty and the pain and confusion it accurately communicates. This will give you, the reader, permission to surface
your own pain and to be honest about your own confusion.

If it moves and it shouldn’t …

Friday, August 28th, 2009

That’s right! Use Duct Tape.

So here’s a question to people of faith? If you are reading this, I assume you have had your life turned upside down due to the sudden changes of behavior in a child you love. Your child’s behaviors tend to be high risk and dangerous. Logic has failed you. For the life of you, you cannot understand why your child is doing/saying some of the things they do or say.

Then they cross a line: they have become either a danger to themselves or to others. You find yourself being dragged, kicking and screaming, into the world of mental health services. Your child has been hospitalized in a psychiatric hospital. Your life will never be the same.

You enter into the strange world of denial. This can’t be happening to my daughter. She’s taking meds that will make her better. My job is to hold her accountable: chores at home, grades at school, to name a couple. But that doesn’t work, does it?

Anger begins to creep into your everyday life. You’re angry with your daughter, with her school, with her mother, with your extended family that seems to visit or call less often. Your anger slips into depression. You seek to comfort yourself with alcohol or substance abuse. You are desperate.

You are angry with your church for they say nothing. What happened to all the cards? … Meals? …Visits?…when cancer stuck its ugly head into the life of your family just a few years ago?

If you are a person of faith, you find yourself sitting in church surrounded with life as it should be… and you become angry with God. Why me, God? You soon begin avoiding the very place that once gave you such comfort. Your life is totally upside down.

So, what moved? Better yet, who moved? You did. And you feel justified in doing so. IF the church doesn’t care, I don’t care! And God? What evidence is there that He cares?

In hindsight, it is such a predictable path we follow. The sad thing is that some of us never realize that it is a path to self destruction.
It’s amazing what hell we will put ourselves through before we fall to our knees and call out for help. When we do, we are surprised to find out that He was there all along. We had moved! God did not.

So how can you use Duct Tape to heal your anger with God? Follow His first great commandment: ‘Love the Lord your God with all your heart and with all your soul and with all your mind.’ Matthew 22:37

Someone challenged me! “ If you claim that God is the most important entity in your life, don’t you think you should be talking with God and not ignoring him?” As I wrote earlier this week, how can you help if all you do is fight? Ignoring God is a passive form of aggression. It doesn’t work, does it?

The day I got on my knees before God was the day I began to use Duct Tape: to talk with Him each and every day in focused reflective prayer. It was the beginning of the end of pain for me. It was the day I began to acknowledge my own role in my daughter’s acting out: she was afraid of me. How could I help her when she feared me? It was the day that I finally acknowledged that my daughter suffered from a mental illness: Bipolar Disorder. It was the day that I discovered a new hope: her recovery. It was the day I began to search openly for answers. It was the day that miracles began to happen in my life.

If it moves, and shouldn’t … use Duct Tape. You can read the whole story in my book, Duct Tape and WD 40 … a parent’s guide to the mysteries of a bipolar child”.

How Can You Help if All You Do is Fight?

Wednesday, August 19th, 2009

“I can’t believe she did that after I told her time and again not to do that!” That about summarizes so many conversations I’ve had with parents of children who suffer from a mental illness.

“So what did you do in response to her defiance?” I ask. “I grounded her for a month!!!” Yeah, like that’s going to work!

Then I ask the famous Dr. Phil question: “How’s that working out for you?” “I don’t know. She’s not talking to me! All she does is hide in her room spending time on her computer.”

Can you ever affectively reach out and help someone when they hide from you? As my Daddy always said, “seems to me you are cutting off your nose to spite your face!”

Ask yourself the question, “who is the grown up here?” “Who has the greater ability at managing their own behavior?”

Expecting a child who suffers from a mental illness to stop acting out is like expecting someone with laryngitis to speak louder. It’s impossible! The illness rules, not the parent.

My faith tells me that I have a loving Father. All too frequently He may not know that I love Him because of the way I behave. But every time I acknowledge the error of my ways, ask for forgiveness, and then truly repent, I feel His Grace. The same works in all loving relationships. Acknowledge your own aberrant behavior and how hurtful it was. Commit to trying to not behave that way again. Ask for their forgiveness. Offer a hug to close the deal.

Easy to say … seemingly impossible to do … unless you learn to manage your own anger. Rather than screaming, go for a long walk by yourself. Do what you have to do to help calm down. After you calm down and your loved one calms down, seek to understand what just happened from their perspective, not yours. People eventually will stop fighting back when you stop yelling, and you start asking.

When Em was in the early stages of her Bipolar Disorder, I yelled a lot. Then I learned a new way to communicate. First, it required a long walk on my part. When I got back from my long walk, I use to say to Emily, “Em, my brain doesn’t work like yours. I would never have done what you just did. Help me understand! Teach me what it’s like to be bipolar.” We’d have a much calmer conversation. I would listen to learn. The more I learned, the more I was able to help. That’s what Duct Tape and WD-40 is all about.

I would love to know what works for you! You can share your thoughts here or drop me an email at david.brown@ducttapeandwd40.com.